Tanya is aged 52 and has Glanzmann’s thrombasthenia (GT), an inherited platelet disorder. She is married and works part time as a nurse specialist. Patients with GT have normal numbers of platelets, but their platelets do not function properly as they lack a key substance which makes platelets stick together to stop bleeding. Tanya’s Story […]
Living with a PRD
Candice, age 29 I guess looking back I didn’t notice a lot a difference between myself and other kids. My parents were always careful which activities I got involved in, however being quite an energetic and out-going child I always had my fair share of bruises. Often I had one or two black eyes. My […]
With many thanks to the family and friends of Viv John Beck, who sadly passed on 17th December 2015. He was a great man with a great heart and was extremely proud of his family. Thank you for the donations to help us help people with bleeding disorders.
Dr Marloes Tijssen organised an evening of music and wine on September 5th at All Saints Church Newmarket and dedicated the evening to her friend Victoria Simpson. A dear friend Victoria – known as Tori, sadly passed away this year after a stroke which was a complication of her Noonan’s syndrome. The evening of music […]