News
As part of our continued effort to raise funds and awareness of bleeding disorders, two of our community, Professor Khalid Naseem and Pip Nicolson, with be riding the full Maratona dles Dolomites Sportive, with distance of 138km and 4000m of climbing.The Maratona dles Dolomites Sportive is one of the worlds largest Grandfondo bicycle races. This […]
The Platelet Society has been formed through the coming together of The UK Platelet Group and The Platelet Charity. The Platelet Society supports new and ongoing research into platelet-related diseases. Members of the Platelet Society are actively engaged in researching all aspects of platelet biology, from how they are made to how they work normally […]
Thank you so much to all the friends and family of Maurice Hynes, who raised a fabulous total of nearly £2,600 to help us help people with bleeding disorders. This wonderful bunch of folk were walking in memory of Maurice Hynes – ‘Dad, Gongy, Moss’ who was diagnosed with a platelet function disorder. The diagnosis […]
Candice, age 29 I guess looking back I didn’t notice a lot a difference between myself and other kids. My parents were always careful which activities I got involved in, however being quite an energetic and out-going child I always had my fair share of bruises. Often I had one or two black eyes. My […]
Dr Marloes Tijssen organised an evening of music and wine on September 5th at All Saints Church Newmarket and dedicated the evening to her friend Victoria Simpson. A dear friend Victoria – known as Tori, sadly passed away this year after a stroke which was a complication of her Noonan’s syndrome. The evening of music […]
The University of Birmingham has hosted a talk on a recent project that has been undertaken across a number of research units, on the Genotyping and Phenotyping of Plateletlets (GAPP). Patients heard from the consultants on their findings and the importance of continuing this work to identify more about Platelet Function Disorders (PFDs) Whilst the […]
